Life keeps rolling along. Just like the tides. It won't stop, even when we are in the most severe pain.
Some days the pain comes crashing in like a tidal wave and other days the pain can be tiny little ripples in the water. You know, just enough to let you know the pain is there and it will NEVER go away. This is my life, my illness and it will continue to progress. When you feel like you're drowning in a sea of pain, just lay back and float for a while. It's ok to just be and do nothing. It's ok to cry and scream. Some times there will be rip tides that take us to the deepest depths of the sea of pain. Those are the times when we need our family, friends and loved ones the most. Those are the times we need people to understand that sometimes we need their help and sometimes we need to be left alone. Those are the times we usually end up in the ER or hospital stays. It's ok. It will pass. We just have to wait it out. We just have to wait for a good day. So, ride out those waves on your good days. Enjoy them. Push yourself to do something you love. Even if it's only for an hour or so. There will be good days. I promise. After all, we are CHRONICALLY FABULOUS and we are living this chronically fabulous life.
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